Fighting

Myocarditis

Every Day

What is Myocarditis?

Myocarditis means inflammation of the heart muscle. In the United Kingdom, one young person dies suddenly each week due to undiagnosed myocarditis. It can affect anyone at any age and is usually related to recent viral infection. The virus may have gone but the immune system over-reacts causing inflammation that can persist in the heart. Other causes include bacterial infections, certain medications, toxins and autoimmune disorders. Symptoms are diverse and include chest pain, mimicking a heart attack, difficulty breathing due to weakened heart muscle, palpitation due to electrical rhythm disturbances, fever and abnormal fatigue.

Our Story

Alexander Jansons Myocarditis UK, formerly known as Alexander Jansons Fund, was set up in July 2013 after the tragic passing of Alexander Jansons from Myocarditis. He was only 18.

Our mission is to ensure that no one needs to endure what Alex and his family had to, with little to no information available, on this inflammatory condition affecting the heart. We aim to do this by researching in detail the causes, prevention and cure for Myocarditis

OUR PROMISE

Alexander Jansons Myocarditis UK has pledged to raise awareness and donate a minimum of £80,000.00 per year to fund detailed research into the causes, prevention and cure for Myocarditis in all its forms. This research will ultimately be published in medical journals furthering the knowledge and understanding of all the causes, preventions and cures so that we can continue to save lives.
We are a 100% Non-Profit Organisation enabling us to donate all of any money raised directly to research.

Our Events

The team at Alexander Jansons Myocarditis UK are working every day to raise awareness for this disease in the UK … and Having Fun! Look at what we have been up to and get involved at [email protected]

Patient Awareness Evening

Join us for our annual Patient Myocarditis evening on 18 November 2020. we look forward to seeing both patients and those who are caring for loved ones with myocarditis or indeed, anyone who has been affected by myocarditis in any way.

£100 000 Presentation

How many zero’s can you spot? Thats right, we have the immense honour and pleasure to hand a 6 FIGURE check to Sanjay Prasad, on behalf of the Royal Brompton, to further our advances made in myocarditis research.

Can Covid-19 Cause Myocarditis?

There have been numerous cases of coronavirus-related myocarditis cases, thought to be a combination of direct viral injury and cardiac damage as a result of the body’s immune response.

In Memory of Amy Wiggins

The charity are honoured to accept a further donation from a member and supporter of The Progressive School of Music, St Quen, Jersey. Although Amy did not attend the school, her spirit and light have touched many at the school who in turn have felt a personal connection with Amy. Sadly, Amy became another victim of myocarditis and passed away in May 2019 at the age of 29 from undiagnosed myocarditis. She was a much beloved daughter, sister, fiancé and friend who touched the lives of so many through her loving, caring nature. Her memory and spirit will continue to live on.