Fighting
Myocarditis
Every Day
What is Myocarditis?
Myocarditis means inflammation of the heart muscle. In the United Kingdom, one young person dies suddenly each week due to undiagnosed myocarditis. It can affect anyone at any age and is usually related to recent viral infection. The virus may have gone but the immune system over-reacts causing inflammation that can persist in the heart. Other causes include bacterial infections, certain medications, toxins and autoimmune disorders. Symptoms are diverse and include chest pain, mimicking a heart attack, difficulty breathing due to weakened heart muscle, palpitation due to electrical rhythm disturbances, fever and abnormal fatigue.
Our Story
Alexander Jansons Myocarditis UK, formerly known as Alexander Jansons Fund, was set up in July 2013 after the tragic passing of Alexander Jansons from Myocarditis. He was only 18.
Our mission is to ensure that no one needs to endure what Alex and his family had to, with little to no information available, on this inflammatory condition affecting the heart. We aim to do this by researching in detail the causes, prevention and cure for Myocarditis
OUR PROMISE
Alexander Jansons Myocarditis UK has pledged to raise awareness and donate a minimum of £80,000.00 per year to fund detailed research into the causes, prevention and cure for Myocarditis in all its forms. This research will ultimately be published in medical journals furthering the knowledge and understanding of all the causes, preventions and cures so that we can continue to save lives.
We are a 100% Non-Profit Organisation enabling us to donate all of any money raised directly to research.
NEWS & UPDATES
The team at Alexander Jansons Myocarditis UK are working every day to raise awareness for this disease in the UK… and having fun! Look at what we have been up to and get involved.
Charity Statement
“In response to recent online comments regarding Myocarditis UK and our position on Covid vaccines, particularly concerning children and young adults, we wish to make clear that…
2024 Berkshire Property Awards
We are honoured to be nominated as the official charity partner for this year’s 2024 Berkshire Property Awards.
Quiz and Fizz
I know its October but hear me out…
Myocarditis and Heart Health Survey
Living with Myocarditis? Want to be heard? we would love to hear from you
Save the Date
That’s right… it’s almost time to start thinking of all things Christmas and I know some of you are groaning into your still summer tanned hands but please…
National Myocarditis Day 2024
On 17 August we celebrated not only Alexander Jansons birthday, but the first ever National Myocarditis Day. See how we did…
Fundraising Target by 2023
For us, there is no challenge too big or a donation too small! Thank you for helping us to reach that £1 Million target in only 9 years! Onwards and upwards to our next million … can’t wait to see that marker climb and reach 2 Million for Myocarditis!
Get Involved
BUY ACTION FOR ALEX MERCHANDISE
DONATE TO RESEARCH
RAISE MONEY ON BEHALF OF MYOCARDITIS.uk
