What is Myocarditis?
Myocarditis means inflammation of the heart muscle. In the United Kingdom, one young person dies suddenly each week due to undiagnosed myocarditis. It can affect anyone at any age and is usually related to recent viral infection. The virus may have gone but the immune system over-reacts causing inflammation that can persist in the heart. Other causes include bacterial infections, certain medications, toxins and autoimmune disorders. Symptoms are diverse and include chest pain, mimicking a heart attack, difficulty breathing due to weakened heart muscle, palpitation due to electrical rhythm disturbances, fever and abnormal fatigue.
Alexander Jansons Myocarditis UK, formerly known as Alexander Jansons Fund, was set up in July 2013 after the tragic passing of Alexander Jansons from Myocarditis. He was only 18.
Our mission is to ensure that no one needs to endure what Alex and his family had to, with little to no information available, on this inflammatory condition affecting the heart. We aim to do this by researching in detail the causes, prevention and cure for Myocarditis
Alexander Jansons Myocarditis UK has pledged to raise awareness and donate a minimum of £80,000.00 per year to fund detailed research into the causes, prevention and cure for Myocarditis in all its forms. This research will ultimately be published in medical journals furthering the knowledge and understanding of all the causes, preventions and cures so that we can continue to save lives.
We are a 100% Non-Profit Organisation enabling us to donate all of any money raised directly to research.
NEWS & UPDATES
The team at Alexander Jansons Myocarditis UK are working every day to raise awareness for this disease in the UK… and having fun! Look at what we have been up to and get involved.
These Boots are made for Walking
… and one of these days, these boots are gonna walk all over you. Well, at least all along Hadrians Wall.
Charity Saves Lives
Marcus White tells us how learning about Myocarditis through Alexander’s story saved his life.
Remembering Nathan Kjendsli
Remembering a young life taken too soon by Myocarditis as Naomi shares her brothers story and love for music.
Good Times for Good Causes
Good Times for Good Causes as we dance the night away with rhythms of the Caribbean at our charity Reggae night.
Heart In A Jar
We are finally allowed to write about our incredible research that has been taking place!
Fundraising Target by 2023
For us, there is no challenge too big or a donation too small! Thank you for helping us to reach that £1 Million target in only 9 years! Onwards and upwards to our next million … can’t wait to see that marker climb and reach 2 Million for Myocarditis!