Alexander Jansons Myocarditis UK

Fighting
Myocarditis
Everyday.

Funding detailed research into the causes, prevention and cure for Myocarditis in all its forms.

We are a 100% Non-Profit Organisation enabling us to donate all of any money raised directly to research.

In memory of Alexander Jansons

What is Myocarditis?

Myocarditis means inflammation of the heart muscle. In the United Kingdom, one young person dies suddenly each week due to undiagnosed myocarditis. It can affect anyone at any age and is usually related to recent viral infection. The virus may have gone but the immune system over-reacts causing inflammation that can persist in the heart. Other causes include bacterial infections, certain medications, toxins and autoimmune disorders. Symptoms are diverse and include chest pain, mimicking a heart attack, difficulty breathing due to weakened heart muscle, palpitation due to electrical rhythm disturbances, fever and abnormal fatigue.

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About Myocarditis UK

What We Do

Alexander Jansons Myocarditis UK is the UK’s only dedicated myocarditis charity. This disease affects all ages but specifically the YOUNG. We work tirelessly to raise the money to Find Tomorrows Cures Today.

Raising Awareness

Making Myocarditis a household name and helping the public, general medical practitioners, A and E centres and medical personal to know and understand what to look out for is a key step in identifying, diagnosing, and treating myocarditis. Increased awareness of myocarditis helps us engage with more both the public and corporate arenas to improve our funding and our reach.

Early Diagnosis

The earlier that myocarditis is identified and treated, the better the outcome for the patient. Myocarditis is difficult to diagnose due to the symptoms which present as other ailments (especially in the young) and the more questions we can answer, the closer we are to a cure. We are committed to making myocarditis easier to understand, to diagnose and ultimately, to cure.

Prevention & Treatment

We do know that we are a long way away from finding a cure for myocarditis, but we have made significant progress in identifying blood proteins and specific genetic markers that may make a person more susceptible to myocarditis and helping us to understand why.

For Clinicians

We have come a long way since we began in 2013 where there was hardly any information available on myocarditis and no one in the UK was conducting any formal research into myocarditis along with the possible causes of why some hearts are susceptible and how to treat them.

Our Story​

Alexander Jansons Myocarditis UK, formerly known as Alexander Jansons Fund, was set up in July 2013 after the tragic passing of Alexander Jansons from Myocarditis. He was only 18.

Our mission is to ensure that no one needs to endure what Alex and his family had to, with little to no information available, on this inflammatory condition affecting the heart. We aim to do this by researching in detail the causes, prevention and cure for Myocarditis

Read Alex's Story

Our Promise

Alexander Jansons Myocarditis UK has pledged to raise awareness and donate a minimum of £80,000.00 per year to fund detailed research into the causes, prevention and cure for Myocarditis in all its forms. This research will ultimately be published in medical journals furthering the knowledge and understanding of all the causes, preventions and cures so that we can continue to save lives.

We are a 100% Non-Profit Organisation enabling us to donate all of any money raised directly to research.

View Our Mission Statement

Our Fundraising Target

OUR TARGET

£ 2000000

For us, there is no challenge too big or a donation too small! Thank you for helping us to reach that £1 Million target in only 9 years!

Onwards and upwards to our next million … can’t wait to see that marker climb and reach 2 Million for Myocarditis!

TOTAL RAISED

£ 0

Help Us Reach £2 Million

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Myocarditis UK Fundraising Action for Alex
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The team at Alexander Jansons Myocarditis UK are working every day to raise awareness for this disease in the UK… and having fun! Look at what we have been up to and get involved.

Charity Statement

In response to recent online comments regarding Myocarditis UK and our position on Covid vaccines, particularly concerning children and young adults, we wish to make

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